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Learning from the Pandemic to Improve Care for Vulnerable Communities: The Perspectives and Recommendations from the Rare Disease Community

Published on 04 Mar 2021.

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Citations
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- COVID-19 Pandemic and Patients with Rare Inherited Metabolic Disorders and Rare Autoinflammatory Diseases—Organizational Challenges from the Point of View of Healthcare Providers, Journal of Clinical Medicine 10(21),
  DOI: http://doi.org/10.3390/jcm10214862
- Shaping national plans and strategies for rare diseases in Europe: past, present, and future, Journal of Community Genetics
  DOI: http://doi.org/10.1007/s12687-021-00525-4
- Lack of Information on the Effects of COVID-19 on Rare Pathologies Has Further Hampered Access to Healthcare Services, Frontiers in Public Health
  DOI: http://doi.org/10.3389/fpubh.2022.852880
- Fatigue and activity management education for individuals with systemic sclerosis: Adaptation and feasibility study of an intervention for a rare disease, Musculoskeletal Care
  DOI: http://doi.org/10.1002/msc.1617